Connecting Care to Those with Rare

Healthcare Excellence For Children And Adults With Rare diseases

Our Mission

Rare STRIDES® mission is to empower patients and medical teams with innovative tools to successfully fight rare diseases, and we are committed to the delivery of exceptional clinical care for rare patients in every medical setting.

We are passionate about giving back to fund patient programs and continued innovation for children and adults with rare diseases who deserve excellence in healthcare.

Who We Are

We are a compassionate team of nurses, physicians and business leaders driven by our personal love for the rare community.

What We Do

We make rare visible in direct medical care with real world evidence and innovation to help save lives!

How We Accomplish Our Mission

Our exceptional care coordination Rare Model of Care™ Module with advanced Interactive Diagnostic Modeling™ supports rapid diagnostic next steps, continuous development and delivery of superior advanced practice models in medicine for children and adults with rare diseases using a collaborative multidisciplinary team approach.

Discover Rare STRIDES® Mobile Application for Patients

Learn more about Rare STRIDES® Clinical Portal for Medical Teams

One of our team members will be in touch shortly

We Are Friends Of Rare Disease Day®