Connecting Care to Those with Rare

Code Rare®

Rare Strides Season 1 Episode 1 – YouTube Join us as we speak with Rare Strides founder, Beth Nguyen. Learn more about the organization and how to #makerarevisible.
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Code Rare®

About Code Rare®

The mission of Code Rare® is to inspire medical teams to collaborate with nonprofits, patients, and families through Rare STRIDES® Nurses Speaker’s Bureau to advance understanding about next steps, diagnostics and patient-centered clinical care delivery for rare diseases. 
 
The goal of Code Rare® for patients and families is to support and improve the quality of life for children and adults with rare diseases in all aspects of their healthcare journey. 
 
Code Rare® is a pilot program spearheaded by a paramedic and passionate registered nurse with a rare disease as a vital nationwide call to action: #Make Rare Visible! 
 
CODE RARE® shall be initiated by First Responders and hospitals to trigger immediate education delivery and specialized resources by Rare STRIDES® nurses for medical teams taking care of patients with rare diseases. 

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