https://www.youtube.com/watch?v=Z5ChvTErA7g| Rare Strides Season 1 Episode 1 – YouTube Join us as we speak with Rare Strides founder, Beth Nguyen. Learn more about the organization and how to #makerarevisible.Thank you so much!
About Code Rare®
The mission of Code Rare® is to inspire medical teams to collaborate with nonprofits, patients, and families through Rare STRIDES® Nurses Speaker’s Bureau to advance understanding about next steps, diagnostics and patient-centered clinical care delivery for rare diseases.
The goal of Code Rare® for patients and families is to support and improve the quality of life for children and adults with rare diseases in all aspects of their healthcare journey.
Code Rare® is a pilot program spearheaded by a paramedic and passionate registered nurse with a rare disease as a vital nationwide call to action: #Make Rare Visible!
CODE RARE® shall be initiated by First Responders and hospitals to trigger immediate education delivery and specialized resources by Rare STRIDES® nurses for medical teams taking care of patients with rare diseases.
Subscribe to Us
Link to Join Private Facebook Group for the Upcoming August 1, 2021 Webinar on Code Rare®:
(3) Rare STRIDES® Group (Official) | Facebook
Our Awesome Partners
Become Participants or Our Partners
“Rather, ten times, die in the surf, heralding the way to a new world, than stand idly on the shore.”