Connecting Care to Those with Rare

Nurses Speaker’s Bureau

How we Accomplish our Mission:

  • Invite medical teams into Grand Rounds to actively solve unmet needs in medical care for patients with rare diseases
  • Deliver medical education with real world testimonials on rare diseases to promote continuous learning
  • Lead clinical training sessions using case studies to advance clinical innovation
  • Offer preceptorships and blogging opportunities for medical and nursing students
  • Inspire medical teams to engage in clinical innovation through Rare STRIDES® to advance understanding about care and rare diseases across every medical discipline.

"Rather, ten times, die in the surf, heralding the way to a new world, than stand idly on the shore."